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Understanding.

Including.

Supporting.

Loving.

Advocating.

A book that teaches it all.

This book celebrates those who have Down Syndrome and educates the readers about what characteristics those with Down Syndrome often have, from the ups to the downs and everything in between. The goal

is that readers of all ages will be empowered and excited to become intentional advocates for the

Down Syndrome community and for inclusion.

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My Story

From the moment my younger brother Josh entered our world, our lives were changed for the better.

Growing up, my parents taught my older brother and me to treat Josh how we want others to treat him because they'll look to us as the example. What an important mantle that has been for our family to carry, but one that we wouldn't trade for anything.

I was an elementary school teacher for many years and, as I searched for books to read with my students, I noticed a lack of age-appropriate books with engaging stories for young children that also taught the specific characteristics and factors that are involved with a Down Syndrome diagnosis. I knew, as a passionate advocate for the Down Syndrome community and as a sister who loves and adores her brother with every fiber of my being, that I needed to tell my story in a way that filled that literary void.

My goal and my prayer with this book is that all who read it walk away inspired to change their mentality about who someone with a disability is, and that all who read it begin to put aside their own reservations and plans, and embrace for their own lives the challenges, the patience, the open heart, and the unconditional love that Joey and his sister walk through together in this book.

 
Purchase The Book

Joey is a kid just like all of us, except there's something unique about him... he's a superhero. How? Well, Joey has Down Syndrome and all of the characteristics that he has because he has Down Syndrome are his super powers. Through all of the ups and the downs, Joey grows in his skills and his sister is there every step of the way to cheer him on. As she loves and helps her brother with his superpowers, she wonders, "can I be a superhero too?". She'll quickly see that, even though she isn't the type of superhero that her brother Joey is, she has been her own important kind of superhero all along.

 

This books teaches kids, and readers of all ages, what causes Down Syndrome, what traits or behaviors people with Down Syndrome often have, how to better understand people with Down Syndrome, and how to intentionally include and speak up for those with Down Syndrome. Because you never know when your advocacy will make YOU a superhero too!

You can pay via Venmo, sending a check directly, or via credit card. For Venmo or sending a check, choose "Manual Payment" for your payment option.

Payment Note: When paying via Venmo or a check,
100% of your payment will be received by the Special
Ups and Downs. When paying via credit card, a
percentage will be deducted by Wix for credit card processing and not paid to Special Ups and Downs.

 
1000 homes and 100 classrooms?!
Be a part of our goal.

One of the goals in creating this book is to get copies of the book into 1000 homes and 100 classrooms so that its message can reach as many readers and impact as many lives as possible. By purchasing this book, you are inspiring the readers to be advocates.

When you check out, please include the name(s) of the homes, readers, and/or classrooms that you are purchasing this book for. For example, "The Charles family", "Miss Mann's Kindergarten class", "Harper and Oliver", etc. If you are ordering more than one book for more than one home or classroom, please include all names. You will see a section at check out titled "Names of Homes and Classrooms" where we ask that you fill out these names.

We will keep a running list on the website of the homes and classrooms that this book is being read by to celebrate the ripple effect of this important lesson. You can check out this on the "Advocates" page.

 
What Readers Are Saying

As a sibling, it is wonderful to see a book that helps explain, in an accessible way, what makes those with Down syndrome special and how those things are to be embraced. I also appreciated that the book acknowledged that, while our friends with Down syndrome are known to be happy, they are in fact human and experience the same range of emotions we all feel. This book is a reminder to us all of the power that comes from welcoming all those we meet as friends and valuing who they are! 

JENNA,

Co-founder and Director of LiveUp Programs

Sister of young adult with Down Syndrome

 
Who is an advocate?

An advocate is someone who intentionally speaks up for something or someone, who passionately encourages support for a cause, who is a supporter or defender, and who fights for the rights of others.

Are you an advocate?

When you purchase a book (or more than one!), the home or classroom

that is receiving the book will be added to this list of those who pledge

to be advocates for the Down Syndrome community.

Be a part of sending this book into 1,000 homes and 100 classrooms!

 

Homes and Families

  1. Steve and Linda Brown

  2. Caleb, Miram, and Luca

  3. "

  4. The Charles Family

  5. Erik and Family

  6. The Urbine Family

  7. Moshe Welch

  8. Naomi and Storm Kemmerer

  9. Forrest, Johanna, Teddy, Benny and Theia Kemmerer

  10. Grant Artus

  11. The Pogues

  12. Carol C.

  13. Tammy Leider

  14. "

  15. Bobbie-Lynn C.

  16. Tina B.

  17. Emily S.

  18. Rachel Rose

  19. Lauren Coleman

  20. The Lowenthals

  21. Susan Chandler

  22. Betsy Baron

  23. Brian and Bee Geller

  24. Matt Rosenberg

  25. Gabriella Kaplan

  26. The Patel Family

  27. The Mann Family

  28. The Finley house

  29. The Kelley family

  30. The Chernoff family

  31. Peter and Faith Yesner

  32. Steve and Stacy Skinner

  33. The Bernis family

  34. Tanya Palmer

  35. "

  36. Rachel Kaufman

  37. Rob Worthington-Kirsch

  38. "

  39. Carolyn Williams

  40. The Hart Family

  41. The Seidner Home

  42. The Tan Family

  43. The Jones Family

  44. Tina DeVuono

  45. Anchour

  46. The Pogue Family

  47. The Toth Family

  48. Joe Miterko

  49. Stacy Bania

  50. Ivan Mieth

  51. The Mieth Family

  52. Alycia Mieth

  53. Cole Chreitien and family

  54. Rabbi Eric Carlson

  55. Allie Rivera

  56. Stephanie Caracelo

  57. David Tokajer

  58. Ella R.

  59. Kennedy and Josephine

  60. The Salkind Family

  61. The Edelstein Family

  62. The Lawson Family

  63. The Summers Family

  64. "

  65. "

  66. DiGiorgio Family

  67. The Kellam Family

  68. Arlene Buffum

  69. Amanda Jacobs

  70. Mila, Ivy, and Leora

  71. Hannah Bragg

  72. The Snodgrass Family

  73. The Kullman Family

  74. The Hurtado Family

  75. Scott and Trudy Orthey

  76. Alexia Formby

  77. "

  78. Andrea Yesner

  79. "

  80. Kristy Hunt

  81. Maddie Harvey

  82. Ari and Karen Hauben

  83. Sharri and Philip Zelson

  84. Heidi Hildick

  85. The Paisley Home

  86. Christina, Caleb, and Nicholas

  87. The Bramble Family

  88. Barbara and Mitch

  89. Joshua Aaron

  90. Aaron Shust

  91. Norah and Levy

  92. The Goldberg Family

  93. Janice McPhillips

  94. Denzel Pollock

  95. "

  96. Bonny Hunt

  97. Kendall Yarosh

  98. "

  99. The Jacobs

  100. The Halpern Family

  101. Melissa Moskowitz

  102. John and Rachel Hartin

  103. The Taylor Family

  104. The Fischer Family

  105. Jimmy Smith

  106. Nate and Rachael Itescu

  107. Jaclyn Adams

  108. Harper and Oliver

  109. Agostinelli Family

  110. The Uckun Family

  111. Michaela Marcellino

  112. Mara and Ben Weisman

  113. The Horol Family

  114. The Kungu Family

  115. The Graves Family

  116. Josh and Cara Itescu

  117. Heaven Lewis

  118. The Brown Family 

  119. "

  120. "

  121. "

  122. The Goldstein Family

  123. The Boyd Family

  124. Carter, Cayden, and Casey

  125. The Chefran Family

  126. Nana-mbra Idun

  127. Malchione-Hanes Home

  128. Hanes Home

  129. Elizabeth Kwoka

  130. Sharon Grindle

  131. Talia Ashby

  132. The Krause House KC

  133. Jenna Edmunds

  134. Smith Family

  135. Caleb Goldberg

  136. Rabbi Steve Weiler

  137. "

  138. "

  139. "

  140. Ellie and Judah B.

  141. Tara Cerce

  142. London and Kai

  143. Alec

  144. Sivan, David, and Sabra Brickner

  145. Rebekah G.

  146. "

  147. Schlabach Family

  148. Amy Moore

  149. Reid Kellam

  150. "

  151. Rachel Grayson

  152. The Malcolm Family

  153. Matt Adams

  154. Courtney J.

  155. Peggy Koustik

  156. Rosie Amsterdam-Mac

  157. Aaliyah

  158. Parth Bhatt

  159. Carter and Nora

  160. Ruth Stepakoff

  161. Carrie Paul-Stein

  162. Mary Donahue

  163. Charissa Wendland

  164. Holly Pott

  165. Jeff and Kathy Warnick

  166. Tamar S.

  167. Tim Lawrence

  168. Steven Granado

  169. Lauren M.

  170. Emma Leitson

  171. Misha Hoyt

  172. Deb Dickerson

  173. Willow, Olivia, and Delilah

  174. Lauren Cavacini

  175. Amanda Stern

  176. The Polley Family

  177. Yohann Kurzweil

  178. Jonathan Orona

  179. Lisa A Kowalski

  180. The Schaul Family

  181. Erin Perry

  182. Linsi Clain

  183. Maryrose Graves

  184. "

  185. Susan Kellam

  186. Morgan McFatridge

  187. Kylie

  188. McFatridge Family

  189. Jackie Prichard and Family

  190. "

  191. "

  192. Joe Bernardo

  193. Diana Hochner

  194. The McBride Family

  195. Phovilaychit Family

  196. "

  197. Preston

  198. David D.

  199. Rebecca Vitkus

  200. Kathy Adami

  201. Rebekah Rich

  202. "

  203. "

  204. McIlhenny Family

  205. Lauren Bucca

  206. Jack Popham

  207. Marty Lawson

  208. Barbara Adams

  209. Evin Lawson

  210. Naomi Meyer

  211. Elizabeth Vena

  212. The Spitzer Family

  213. Bonnie Offit

  214. "

  215. Makaela Olin and Cheyne Miller

  216. Brooke Shapiro

  217. Lisa Thorne

  218. Van Der Plas Family

  219. Tapiwa Chadambura

  220. Susan Taylor

  221. Lisa Troncale

  222. Julie Collis

  223. Subrahmanyam Family

  224. Rosie McGratty

  225. Amy Krause

  226. Hyslip Homestead

  227. The Orth Family

  228. Linda Cruz

  229. Beth Ramirez

  230. Dolly Ziegler

  231. Demetrius Young

  232. Butzbach Family

  233. Riley and Cameron Treble

  234. Tricia Wilson

  235. The Motai Family

  236. Morgan McFatridge

  237. Vicki Goettel

  238. "

  239. The Desser Family

  240. "

  241. "

  242. "

  243. "

  244. Ari Rabe

  245. "

  246. "

  247. Raelyn

  248. Fern Eskate

  249. Sadie and Levi

253-492. Childrens Hospital of Philadelphia Families (240 copies)

493. Shae Wilbur

494. Talyah Shooster

495. June Dorn

496. Miller Family

497. "

498. Hanh Oviedo

499. Chantelle McMullin
500. Misty Coy Snyder
501. Victoria Hable
502. Courtney Morey
503. Sarah Lowry
504. Madeline Massingill
505. Tiffany Kim
506. Andrea Temarantz
507. Katherine Betanzo
508. Doubling Down Mom
509. The Sanchez Six
510. Jen Jones
511. Ari Chernoff

512. Genevieve Martin
513. Ellie Sanazaro
514. Kennedy Garcia
515. Rachel Moon
516. Sierra Anglim

517. Eileen Lloret

518. "
519. Whitney Moody
520. Sara England

521. Emily Carpenter

Classrooms and Schools

  1. 2nd grade Corinth Elementary

  2. Bobbie-Lynn's son's 2nd Grade classroom
  3. Cindy H.'s special education classroom
  4. "
  5. "
  6. Cynthia M.'s classroom
  7. Courtney F.'s classroom
  8. Ms. Campbell's preschool class
  9. Kelly Merk/Pope Classroom
  10. Mrs. Gray's class
  11. Megan at Evergreen Elementary School
  12. Kristen at the DCIU
  13. Mrs. Lindemuth's classroom
  14. Avon Grove Charter School
  15. Mrs. Kerins' Art Class
  16. Ms. Cross' 2nd grade classroom
  17. Springton Manor Elementary
  18. Willowdale Jennersville
  19. Childhood Psychologist Mainline PA
  20. Childhood Psychiatrist Mainline PA
  21. Miss Kramer's classroom
  22. Upper Darby Schools
  23. Springton Lake Presbetyrian Church
  24. The John G. Leach School
  25. "
  26. "
  27. Ms. Miraglia's classroom
  28. Mrs. Dankert's 2nd grade classroom
  29. Unionville Chaddsford School District
  30. "
  31. "
  32. "
  33. Mrs. Barry's Tree House Room
  34. Saint Matthew Christian Nursery School
  35. Ditmas Park Pediatrics
  36. Shoreline Christian School's Pre-K Classroom
  37. Shoreline Christian School's 2nd grade Classroom
  38. Shoreline Christian School's 4th grade Classroom
  39. Tree of Life Messianic Jewish Congregation
  40. Lakewood Elementary School
  41. Shoresh David
  42. Simchat Yeshua
  43. "
  44. East Ward Elementary School
  45. Mrs. Bertolino’s Class
  46. Robert Goldschmidt and Shabbat Classroom
  47. The Learning Experience Oldsmar
  48. Jenny Warnick’s Therapy Library
  49. Mrs. Worthington’s 2nd Grade Class
  50. Ms. M
  51. Ms. F
  52. Mrs. Barry
  53. Mr. Riddle
  54. Mrs. Seals
  55. Mrs. Forstrom
  56. Gina Wygonik
  57. Mr. Pata's 6th Grade Classroom
  58. Beth Hallel's Children's Ministry
  59. Connie Byers' Daughter's Classroom
  60. Alexander Adaire Elementary School
  61. Stonington Community Center
  62. 2nd Grade Classroom of PS277
  63. Dauphin County School System
  64. Special Education Teacher in NY
  65. Special Education Teacher in VA
  66. Charles Hay World School
  67. "
  68. CHOP Down Syndrome Program
  69. "
  70. Marietta Schools
  71. "
  72. "
  73. "
  74. "
  75. "
  76. 7th Grade Social Studies at Whisconier Middle School
  77. Ms. Warwick's Class
  78. Kiddie Academy
  79. "
  80. "
  81. "
  82. Homeschooler Group
  83. "
  84. "
  85. Homeschool Moms
  86. "
  87. "
  88. Mrs. Smith

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